Dear Jules,
Every time I read the Bible--okay, let me be honest, every time I go to church and listen to the Bible--I'm struck by the sections about the Pharisees judging Jesus. He heals the blind, the sick, and the lame, but these priests, supposedly religious men, attack Him because he's not following the rules.
Their rules.
It's easy to look at this and think we would never be so closed-minded, but most of us are, when I think about it, a lot like the Pharisees. We grow up with or develop a certain set of rules and, when people make different choices, we judge them.
For the most part, I think it makes us feel better about ourselves and our choices: surely we are the ones in the right? Surely we have it "right?"
Then again, that's probably what the Pharisees thought, and now their very title is shorthand for hypocrites, people who superficially do what's right but don't look at the spirit of the matter.
When I was younger, I confess that it scared me not to see the world in black and white. If there were "right" choices and "wrong" choices, I could simply make sure I chose the correct ones and avoid making mistakes. I judged people who I thought were making mistakes: my classmates, my brother, people on television, and, too often, myself.
I was a really unhappy person because, every time I deviated from my own rules or made a "mistake," I was convinced that I had made an irrevocably wrong choice.
Fast-forward thirty years or so, and I'm now a mom, a wife, a professor, a person who has been forced, by life, to see many shades of grey. I've learned that choices are not "wrong" or "right," they are sometimes the best choices for a particular person, a particular situation. I remember very clearly when I was twenty-seven, sleeping in the critical care unit because my father was dying. I was single, no partner in sight, and feeling really crappy about it, and I met a woman who had married and had kids at age 16. She told me she envied my going to college, graduate school, and working, and I realized then that all of our choices or life situations are not better or worse, just different.
Nothing has made this more clear than becoming a parent.
The minute you become a parent (or maybe even before), people start judging your choices. Why are you letting your kid wear that? Eat that? Do that? Why don't they sleep with you? Why do they? Why didn't you breastfeed longer? Why did you? No matter what you do, it seems that you can't win.
Your Nagyi and Grammy both stayed at home with me and with your dad, and they were judged for it. When women like I work, we are judged for it. As a teenager, I often wondered why my parents made certain decisions, but now I realize that they were simply making the best decisions they could for our family. That's what every parent wants: what's best for his or her child. Our definitions of that might be different, but we have to let up on the "mommy wars" long enough to respect each other, to concede that people's choices might be different (not better or worse) than ours.
Last weekend, I ran into a very blunt special-needs grandparent. When I asked her if her grandson was mainstreamed (because she was talking about going with his class on field trips, like I do for you), she said "no" and proceeded to tell me that mainstreaming was not the right choice for you. How were you to learn life skills, to succeed as a person with a disability, if you were not educated by special education "experts?"
I'm sure many people have thought this, but no one has ever asked me outright, and I must admit I was left flailing. She then talked about how "we young people" don't understand the meaning of sacrifice, working when we should be staying at home with our special needs kids.
I left the situation feeling deflated, insecure, attacked and torn apart. Once I thought about it, I realized that she must be pretty insecure about her own choices to attack another's so bluntly. I wonder if she, too, is unhappy.
I want you to know, Jules, that I mainstream you because I've read lots of studies that show this to be a good approach. Because you have lots of friends at school who love you, and because you might learn language more quickly by being around it more. I don't want to judge people who don't because I can see their side as well, and it's becoming more and more difficult to keep you included. Bottom line, I want to do what's best for you.
If you're reading this and you've had to go to therapy because of my decisions, I am so sorry. I want you to know that I try to do what's best for you, and it's all any parent can do.
And I want anyone I might inadvertently have judged to know that I'm truly sorry. None of us can live each others' lives, but what we can do, especially as special needs parents, is to support each other.
Instead of attacking one another, we can do what Jesus did: we can heal each other. We can't heal the blind, but we can educate people and help them to see. We can't exorcise spirits, but we can listen and be there for our friends with mental illness. We can't heal illness, but we can be there, like that woman was for me years ago in that waiting room. Being there, listening without judging, is perhaps our best form of healing.
I'm not there yet, but I'm working on it.
Kathleen, I love these letters to Jules. I totally understand where you are coming from as a parent. I, as you know, grew up with a special needs brother who was born in the mid 1950's. The challenges you talk of today were the same challenges we fought for in the sixty's and all his life.
ReplyDeleteJules will get the best because you fight to give her the best. As a parent, this is what you do. Some of our parents chose to work and some chose to stay home with their children. Quite frankly it depends I believe on family finances in most cases today. I chose to stay home once my girls were born until they were in grade school. Then I arranged my work schedule to their day, but I was afforded that luxury because of Henry's job and our financial situation.
When it comes to others criticizing you doing what you do for Jules, let it go, don't judge them. Remember the saying," Until you have walked a mile in their shoes".... Each of us has our own pair of shoes..... I love your last paragraph, it hits the nail on the head! Only God judges... and yes, none of us are there yet. We are all still working on it. Love you friend, Esther
Thank you, Esther. And even God forgives...
Delete❤️
ReplyDeleteWell said, Kathy. It's so sad the US has lost its village. It's a much better way to raise children when we're all invested in our kids AND our neighbors kids. Not just ours. There would be a lot less judgment if we all just helped each other. We ALL need help sometimes. Love you and your beautiful Jules. Go easier on yourself too. If our kids don't see us make mistakes, they'll believe they need to be perfect, and that's stressful. Everyone makes mistakes. We do our kids a service when we fess up, admit mistakes, apologize, try harder next time and forgive ourselves. The kids see that. You're heart is so beautiful. Jules reflects your glow.
ReplyDeleteThanks, Meg. I agree with this, and it's something I'm working through. Your heart is beautiful too, and I can't wait to have a glass (or a few glasses) of wine and catch up (not from a box this time; ).
Delete